This Agreement was written in English (U.S.). To the extent any translated version of this Agreement conflicts with the English version, the English version controls. Please note that the “Applicable Law” Section contains certain changes to the general terms for Users outside the United States.
The Information We Collect
We may have access to the following categories of information regarding you and your visit to the Site. Only some of these categories of information identify you directly, but each category offers some information about your interests and activities that could be used to make inferences about you.
Personally Identifiable Information/Site Registration
The Site is designed so that you are not required to provide any personally identifiable information unless you are requesting access to certain features and services or you are voluntarily submitting personally identifiable information to us. Personally identifiable information may include a User’s name, telephone number, e-mail address and any other personal information that could be used to contact or identify you that you provide through the Site to us, our employees or agents, via e-mail or otherwise. When this information is combined with any information about your health or medical condition, we refer to the resulting information as health-related personal information.
The Site may allow you to register yourself to access certain pages or services. For example, the the site or any of our apps feature enables patients to register at our Site where they can create an individualized profile, which may include information relating to their experience with epilepsy including seizure episodes, medications, side effects, past medical operations, epilepsy history in the family, other conditions in the family, hobbies, moods, and quality of life. We may also request a User provide his/her gender, age, and state of domicile, for demographic purposes only.
Anonymous Browsing Information
- IP Address. We may record the Internet Protocol (IP) address of your computer or handheld mobile device when you visit our Site. Without more, the IP address does not identify you personally, but it is what allows us to maintain communications with you as you move about our Site.
How We Use the Information
Personally Identifiable Information. We use the personally identifiable information collected from you to contact you confirming your registration with the Site (if applicable), respond to your questions and/or comments, and provide any services or information that you request through the Site. We may also provide you with information about important functionality changes to the Site.
Health-Related Personal Information. If you choose to participate in our interactive services, we will collect the information you disclose to us and analyze it to discover new facts that could help us better understand how our services are used in coping with your condition. We may combine, in a non-identifiable format, your health-related information that you provide with information from other Site users to create aggregate or summary data that we will use for our organization’s purposes and to support our mission, including research to improve medical care and analyses that may help us offer better support services.
Who We Share Your Information With
We will not sell, share, trade or give away to third parties any personally identifiable information that we ,may collect or receive regarding Users of the Site without the Users’ permission except as explained below:
- We may disclose personally identifiable information to our affiliates, business partners or others who work for us such as service providers, vendors, contractors and agents when providing services on our behalf.
- We may provide to others aggregated statistics about our Users’ site activity for purposes of research, marketing, promotion or similar activities. None of these statistics will contain personally identifiable information.
- We may disclose personally identifiable Information to government officials and law enforcement agencies when it is required by law (e.g., in compliance with a subpoena or court order) or if we have a good faith belief that such action is appropriate and necessary to respond to claims, or to protect the rights, property or safety of the Site and its Users, us or others. We may also share information with the government even without a request pursuant to regulatory reporting requirements.
- In the event that we decide to sell all or part or our assets, we reserve the right to include the information we have about you among the assets transferred to the acquiring company(ies).
Applicable Law/International Issues
Information that is submitted to this Site will be collected, processed, stored, disclosed and disposed of in accordance with applicable U.S. law. If you are a non-U.S. User, you acknowledge and agree that we may collect and use your information and disclose it to other entities outside your resident jurisdiction, as discussed in “Who We Share Your Information With” above. In addition, such information may be stored on servers located outside your resident jurisdiction. U.S. law may not provide the degree of protection for personal information that is available in other countries. By providing us with your information, you acknowledge that you have read this Policy, understand it, agree to its terms and consent to the transfer of such information outside your resident jurisdiction. If you do not consent to the terms of this Policy and have already provided us with information, please contact us through the Site’s Contact Us section and let us know how you would like us to handle such information.
Linked Internet Websites
The Site may provide hyperlinks, which are highlighted words or pictures within a hypertext document that, when clicked, take you to another place within the document, to another document altogether, or to other websites not controlled by us. These hyperlinked websites, may contain privacy provisions that are different from those provided herein. We encourage you to review the privacy policies posted on those, and all third party web sites. You acknowledge that links to third party web sites are provided for your convenience only and do not constitute an endorsement by us of such third party web sites. We are not responsible for the collection, use, or disclosure of information collected through these websites, and we expressly disclaim any and all liabilities related to such collection, use, or disclosure.
Children’s Privacy Protection
This Site is a general audience web site not geared towards children. We are committed to protecting children’s online privacy and this Site does not knowingly collect any personal information from children under the age of 16. If you are under 13, you agree that you will not provide personal information about yourself to us through the Site. Please contact us at the email provided in the “How to Contact Us” section of this Policy if you believe we may have collected information from a child and we will work to delete it.
Your Privacy Choices
We would like to send you information about our organization and our services if you wish to receive such information. You may opt-out of receiving promotional communications at any time. If you wish to stop receiving e-mail or postal mail from us or to have your personally identifiable information removed from our Site, you may contact us through the Site’s Contact Us section.
California Privacy Rights
California residents have a right to request certain information regarding our disclosure of the resident’s personal information to third parties for direct marketing purposes including when you specifically permit the disclosure. To make such a request, please contact us through the Site’s Contact Us section.
We provide reasonable protections for the personally identifiable information you share with us. To prevent unauthorized access, maintain data accuracy and ensure proper use of your personally identifiable information, we and our partners have appropriate physical, electronic, and managerial procedures in place to safeguard and secure all information we collect online, consistent with industry practices. We make no representations or warranties with regard to the sufficiency of these security measures. We shall not be responsible for any actual or consequential damages that result from a lapse in compliance with this Policy as a result of a security breach or technical malfunction. Internet transmission, including e-mail transmission, is not secure and as a result, we cannot guarantee the security of our database, the Site or services, nor can we guarantee that the information you supply or that we send to you or on your behalf will not be intercepted while being transmitted to us over the Internet. We are not responsible for your actions or the actions of third parties. As the operator of the Site, we may need to review or monitor your electronic mail and other communications from time to time as may be required by law. Therefore, you should not expect to have an absolute right to privacy in any of your communications.
Third-Party Access to Your Account or Reports
You should not enter information into the the site or any of our apps that would identify you personally. You should be cautious about sharing any personally identifying information to third parties, and do so at your own risk. You are responsible for taking all reasonable steps to ensure that no unauthorized person shall have access to your Site passwords or accounts. If you elect to share your Site passwords and accounts with a third party, or to grant third-party access to your personal Diary, such as a care giver(s) or doctors, nurses or other clinicians (“clinicians”), you understand that in doing so, those third parties may have access to your personally identifiable information or health-related personal information. Furthermore, if you elect to use certain features of the Site to download and/or print your Diary summary reports, you should not include any personally identifying information in the report if you intend to share it with your clinicians or third parties.
We reserve the right to amend this Policy periodically and by continued use of the Site, you agree to be bound by such amendments. We will notify you of material changes to this Policy by posting the revised policy with the date it was revised on this page. Any amendments made to this Policy will be considered effective immediately after the amendments are posted on the Site.
How to Contact Us
If you have any questions about this Policy or wish to change your options, please contact us through the Site’s Contact Us section.
Date of last revisions: March 20, 2023